• This topic has 2 replies, 3 voices, and was last updated by Jennifer Joy.
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    • #33289

      In my experience as a Registered Nurse Navigator for our pediatric oncofertility program, I have not had experience observing a fertility preservation conversation with a psychologist. I thought it was very valuable for the psychologist to address the 2 main goals of the discussion upfront. I think this sets the stage and allows the family to feel comfortable in their decision without feeling pressure to make the “right” decision. Often times, we are having these conversations at the same time or shortly after their new diagnosis talk and they are ingesting a lot of new and scary information. To make families feel at peace in their decision and to know they made the most loving and best decision for their child at that moment is crucial. I also appreciated him asking plenty of open ended questions and allowing the patient to participate in the discussion.

    • #33316

      I agree. While I don’t have much experience with AYA patients, as an infusion nurse, many times we receive patients who were just bombarded with their new diagnosis, plan, medication side effects within a day or 2 and now they have to sit in for their treatment only to hear us repeating their expectations with their regimen.

      But I do find repetition helpful especially with different health team members. As everyone is different giving explanations and how they grasp the content of the topic. In this case, the doctors had briefly explained to the patient fertility options before they were referred to the psychologist, therefore at least some of the shock was gone by the time they had their second encounter with the topic.

    • #33320

      I feel for patients and family members who have so much information coming at them coupled with big life decisions. Sometimes patients and families are so overwhelmed, they want their medical providers to make the decision for them. I try to break the conversations up in segments to allow them time to digest and process information without overwhelming them. I can imagine parent’s may experience guilt and pressure trying to make decisions about their child’s reproductive health. I too feel repetition and giving them time to process the information is helpful.

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