• This topic has 2 replies, 3 voices, and was last updated by Grace Kim.
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    • #33170

      While I appreciate how the video displayed an organized approach of setting goals of the session and providing information about treatment and purpose of fertility preservation, I wonder if it would be a more effective session if the provider had connected with the referring medical team to assess how much information had been previously provided and how the family initially responded. As a clinician, I would take this information to guide the rapport building process and allow each family member an opportunity to share their initial feelings about discussing fertility preservation as another assessment tool to guide the conversation. By only allowing one parent to share thoughts on the subject, it appears that the other two family members, including the patient, were not invited into the conversation. It may happen that the family may not be emotionally ready to engage in this conversation. Allowing them the space to share their initial thoughts and feeling and explore why as well as agreeing to create a plan if they choose to revisit this conversation can be helpful as well.

      Also, with permission from parents, it may be helpful to meet with the patient alone to determine their thoughts and if different from parents, support a conversation to bring consensus to the family’s decision making process.

      By allowing the family to lead the conversation, they may feel more supported and empowered in their decision.

    • #33186

      I agree. It is important to hear from all members of the family to create a consensus. It is a delicate subject. Having a safe environment where everyone has an opportunity to speak and be listened to, is key to fostering open communication.

    • #33222

      Just like how we are reminded in this training, parents provide consent, while children over the age of 7 are able to provide assent. As you mentioned, I think it’s a good idea to meet with the patient alone (if the patient wants to) to make sure that their opinions align with those of the parents. This can be a preventative measure in ultimately a wrong decision being made and allows for the entire family to reach a mutual decision.

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