• This topic has 1 reply, 2 voices, and was last updated by Tess Sallade.
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    • #33282

      After watching this video, I was able to take away a few strong points that the psychologist did during the discussion that I agree with. I liked that he started out asking what the family had discussed so far regarding this topic with the team. He gave them an opportunity to share how they felt and what they knew so far. He also asked if they knew anything about fertility preservation specifically which was important. When asking this specific question, this gives the provider the opportunity to assess the education and knowledge level of the patient/family.

      If I was working with a prepubertal patient I would first start by asking the parents if they wanted to talk about things without the child first. This could give them a chance to process the information and gain education on the topic before discussing with the child (especially if it is a young patient). If it is a teenager, I would approach differently and make sure to allow the teenage patient to discuss away from family as well as all together.  Patients and  families are always very overwhelmed with a new diagnosis and this specific topic may not seem to be a priority to most people at the time of diagnosis when so many other things are going on. I feel like in my own practice, it get overlooked even more frequently with prepubertal young patients since fertility is such a far away idea. This topic may even seem like a burden to have but initiating education early on so families have a chance to recognize its importance can help reduce regret years later after treatment.

      I always like to print material first, give it the patient/family, let them read over the information, and set a specific time for me to come back and discuss topics. I also tell them to make sure to write any questions they think of while reviewing material so that they do not forget their questions when we dive deeper into education. I also try to get child life involved with the patient to be able to break down the information on their level so they can understand and feel comfortable with the discussion.  Due to the overwhelming nature of this discussion it is always important for the nurse/team member to initiate the follow up discussion after providing educational material for them to review. The patient/family is exhausted and most likely not going to initiate the conversation because other more time sensitive discussions may seem more important. Providing material and setting expectations can help a conversation get initiated and be productive.

    • #33328

      I like your approach to discussing fertility treatment. I like to print materials first as well so that I am able to hand these resources to the patient and family. Including child life is a great idea that I had not mentioned in my discussion post, but I frequently use in my practice to navigate difficult conversations. Allowing a period of followup is so crucial in these patients. I mentioned the importance of following up not only once, but multiple times throughout the treatment process because I think that is crucial as well. I also like that you specifically mentioned using different resources depending on the patient’s age and developmental stage. It is so important to acknowledge these before starting a conversation so that you can be better prepared on how to navigate a conversation like this. Great job on your discussion post!

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