• This topic has 3 replies, 4 voices, and was last updated by Mallory DuBois.
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    • #33219

      In the video with the clinical psychologist, the parents report feeling pushed immediately into the talk of infertility. I thought it was great that the clinical psychology reinforced the idea of never feeling pressured to move forward with a certain option. He emphasizes the importance of feeling “at peace” with the decision being made which I thought made the patient and the parents feel like they were being heard.

      As a healthcare professional, I believe a good strategy is taking the time to build rapport and earning the trust of the parents. Diagnosed with cancer as a pre-pubertal child is devastating and emotional news, especially to the parents. Bringing the topic of infertility on top of their child being diagnosed with cancer is hard to take in, and it is necessary to foster trust and mutual understanding to make the conversation flow more smoothly. Each patient is unique (to age, gender, culture, etc.) and has different values, opinions, and concerns. It is vital for the professional speaking with the patient and family members to take the time to listen and assess what the patient’s concerns are to build rapport. This is a segue for the professional to move forward with the sensitive topic of fertility preservation options.

      • This topic was modified 5 months, 4 weeks ago by Grace Kim.
    • #33227

      I too appreciated that and also even before that when he asked the family to provide information about what they had been told thus far.  As we know, sometimes what we say is not what is heard.  It’s important for us to listen and figure out “where the patient” is and begin our discussion at that point.  As a survivor, once you hear CANCER, very little else is heard until that info can be digested and with the AYA population, there is so much more to consider compared to older patients.

    • #33284

      All,

      We have been successful at our institution engaging GYN–and have done many pre prepuberal OTC cases. With technology advancing we would like to do testicular tissue cryopreservation–but our urologists are currently not interested in pursing.  I have two questions for the group: How can we discuss testicular tissue cryopreservation even though we do not offer it?, and any guidance on how to engage our urologists—any new breaking articles/outcomes to share?–Thanks! Julia Gourde, CNP Cancer Survivorship Children’s of Minnesota

    • #33287

      I feel that the clinical psychologist did a great job introducing this topic to the family. The family stated that they feel pushed into this decision. The psychologist made it clear that they aren’t pushing, they just want to be sure they present the options and that the family makes the right decision for their specific scenario. My position is the Registered Nurse Navigator for our Pediatric Survivorship clinic. This topic can be very difficult to present in a way that the parent and child understand. All of this terrible new is getting thrown at them, and then we top it off with saying it may affect their fertility. Within my Pediatric Survivorship Clinic, we want to be sure we give them the information needed to make the decision that is best for them.

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