- This topic has 4 replies, 5 voices, and was last updated by Valerie Sanchez.
- January 16, 2024 at 1:10 pm #33118
Some of the strategies I would utilize to provide age and developmentally appropriate care for a pre-pubertal child and their family include:
- Recognize that each child is unique, and there is no one-size-fits-all approach. Tailor communication based on the child’s age, maturity, and the parents’ preferences.
- Select an appropriate time and space where this family can focus on the information with minimal distraction and a sense of safety/privacy.
- Use clear, simple language and avoid medical jargon. Provide information in a way that the child can understand.
- Utilize visual aids to help illustrate any appropriate concepts
- Acknowledge that discussing fertility preservation may evoke emotions. Offer empathy and provide a supportive environment for them to express their feelings.
- Be mindful of the family’s cultural and spiritual beliefs by incorporating these aspects into the discussion where appropriate.
- January 18, 2024 at 8:00 am #33131
I agree with the points that you make to implement patient-specific care. In the reading this week it mentions a scale that can be used to assess the child’s values and feelings towards fertility. This might help providers be more comfortable addressing the topic as it is pre-set questions. I think it is also important to involve the parents and perhaps have them fill out the scale as well (separately). The time of diagnosis is overwhelming and not an appropriate time to delve into details. I think as mentioned in this week’s case study, it’s important to broach the topic and send the family home with some reading about options and agree to circle back. At a later appointment, more in depth discussions can occur and referrals made to start the fertility process. I think bringing an age-appropriate child psychologist into the discussion is also helpful if the child is hesitant to discuss their feelings about the topic.
- January 22, 2024 at 11:50 am #33187
I agree with both of you and that patient specific care is required. I do think that along with a child psychologist that using Child Life Specialist to assist with delivering age and developmentally appropriate information to the child would prove useful.
- January 22, 2024 at 1:59 pm #33192
I think using a child life specialist is a great idea and not something that I have used yet. I think this would be great for patients in the age range who may be too young to sign assent but old enough to give verbal assent.
- January 23, 2024 at 10:55 am #33217
I agree with the strategies Katherine set out for age and developmentally appropriate care. I would also add a child Life specialist to the team. Not only will they provide age and developmentally appropriate education, but they would also assist the parents as well.
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