• This topic has 7 replies, 7 voices, and was last updated by Sandi Burns.
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    • #33178

      What strategies would you use to provide age and developmentally appropriate information about fertility preservation to parents of a pre-pubertal child?

      I appreciated that the meetings were organized to meet with family together, independently, then back together again. I think that this design allows for understanding each individuals baseline understanding of fertility, fertility preservation meaning and options, and goals. To continue with strategies that allow for age and developmentally appropriate information, I would use open ended question, allow for safe dialog, and perhaps have illustrations or models available to aid in explanation of any anatomic terms used.

      Meeting with the healthcare team prior to gain insight to family dynamic and baseline understand of the topic may be helpful. If concerns have already been expressed to a member of healthcare team, knowing this and being prepared for time together supports the idea that the patient and patient’s family come first; that as the provider mentions in the video, the goal is to have minimal regrets.

    • #33183

      I agree and appreciate your comments.  The use of open ended questions greatly encourage more dialog.  I also appreciate the idea of using models and illustrations  especially for younger patients. Ultimately, the more information that can be provide to a patient and family in a manner they can easily understand will assist in any learning curve and make all participants feel more comfortable having this important conversation.

    • #33185

      Having open discussions with the parents of the adolescent and perhaps individual conversations with the young adult is important to provide opportunities for each contributing member to discuss concerns and wishes. Discussing this sensitive topic allows them time to process the information and make an informed decision, without rushing and having regrets.

    • #33193

      The video psychologist asked the patient and family about their understanding and feelings about the information already given by their healthcare team. I think starting at this basic open ended place is very important. If a patient/family does not understand why fertility preservation is needed, they will not be able to make informed decisions. Remembering to start at the beginning, in a clear, transparent way, is very important.

    • #33214

      I agree that the goal is to have minimal regrets, but I would also remind the patient that there is no right or wrong choice. Cancer itself has already turned their world upside-down, now we’re also adding the stress of making the “right choice” for fertility preservation. I also agree with the strategies of open-ended questions to allow for open and safe dialogue.

    • #33215

      Looking ahead at some of the videos, I also think it is important to keep a back and forth discussion rather than a one sided conversation that is solely based on providing information. Understanding patients objectives of the visit, place of baseline understanding and fertility goals prior to overwhelming them with information that may not apply to their specific needs has potential to “shut down” the conversation more than help.

    • #33218

      I agree that open ended questions are important and most importantly reassurance that there is not right or wrong answer for this young population who may have no idea what they want later in life. A thorough discussion of their options for a possible future need is essential and for them to understand it is ok if they never act on any of the options they chose.

    • #33262

      All of you have made great points/suggestions! The teenage years can be such an awkward stage of life and some don’t feel comfortable discussing topics related to reproduction for multiple reasons. While some may have a very open relationship discussing anything with their parents, others may not have that same relationship.  I think it’s a great idea to have a 1:1 discussion with the teen on what they understand and what thoughts they have for their future as far as having a family of their own (if they’ve even thought of that yet).  I understand that sometimes you only have a short window of time to have these discussions; however, if you can build a good rapport with that individual hopefully they will open up regarding their wishes.  I also think it’s a good idea to have a discussion with the parents separately as well to discuss their thoughts/concerns.  If you have 2 parents with differing opinions and they’re expressing this in front of their child, that may add more pressure on the teen. He/she will be in conflict about what they actually want to do because they may not want to upset either parent.

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